Wednesday, May 28, 2014

Urinary Tract Infection


                                                          May 28, 2014

 
                                                                                                                                                                                                                                                              Kellisa's doctor called this afternoon to report that Kellisa has a urinary tract infection. We were so relieved with the diagnosis! (Click here to read why we were so relieved)                                                                                                                                     



Tuesday, May 27, 2014

Neonatal Intensive Care Unit

 
Chicago, IL
May 26, 2014
 
 
 
 
We flew up to Chicago so Lisa and the girls could attend a baby shower. Unfortunately, Kellisa was battling a fever and spent most of the weekend sleeping. On our way to the airport for our return flight, we made the last minute decision to visit the NICU where Kellisa spent the first 113 days of her life. It was a very emotional, but positive experience.
 

Thursday, May 15, 2014

No Limits Recreation



"No Limits Recreation, Inc. is a 501(c)(3) nonprofit corporation, based in Flagstaff, Arizona. The goal of No Limits is to provide whatever assistance is necessary to enable individuals with physical and/or cognitive disabilities the opportunity to participate in outdoor adventures. At this time, No Limits is focused on extended day hiking and multi-night backpacking trips. Group size for each trip is kept small in order to preserve the intimacy and simplicity of the wilderness experience, as well as limit our impact on the environment. No Limits believes in the importance of re-connecting with the natural world and feels that everyone, regardless of ability, disability or financial status, deserves to have the chance to get out and experience the world in a more natural way".



Monday, May 12, 2014

Debbie Niemann


Kellisa's Path started out as a means to share Kellisa's adventures with friends and family. The blog has grown beyond it's intended purposes over the years as many strangers are interested in "Kellisa" and following her latest activities. In the last few years, we've even added an intrepid little sister, Laurel to our adventures. However, as things change, some unfortunately remain the same. It can feel like we are alone when out in the world because we still have only seen one other disabled child on a trail (we've hiked well over a 1,000 miles) and even though we've only been a part of a few organized races, Kellisa has been the only "wheelchair" competitor each time.  

One nice thing about the Internet, we've realized that we are NOT alone. There are other children that are very similar to Kellisa who have parents that support them and allow them to enjoy the outdoor environment. Although, I still believe it's an extremely low percentage. I've always said it's sad that these kids are trapped in their bodies, but lets not also trap them in the inside world because it's the easy thing to do. They deserve to be outside like any other kid and I've always known that Kellisa can't be the only one who actually thrives when outside "doing" something fun.

It's been our pleasure to get to know an amazing girl from Kansas who shares many similarities with Kellisa. I'd like to point out one obvious similarity: huge smiles that are worth more than a 1,000 words and one less obvious: their outright refusal to pass entirely through the Gates of Heaven! Cecilia is also fortunate to have a determined mother that includes her in some crazy activities for a child in a wheelchair and we love their story! Eventually a light bulb went off and the idea of posting an interview with someone on a similar path was conceived.

With that, we'd like to introduce Cecilia and her mother, Debbie as they share their story with Kellisa's Path.