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Showing posts from May, 2021

22

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 GO BIG or Stay Home! After years of going big for Kellisa's birthday, we stayed home for the second year in a row due to the global pandemic. We had HUGE plans last year for Kellisa's 21st birthday, but didn't even think about doing much this year. We're still playing it safe since Kellisa is considered high risk.  Kellisa woke up a 22-year-old young lady and enjoyed a low key day at home with family. She enjoyed a push through the neighborhood before opening presents from family and friends. Kellisa watched and listened to plenty of The Wiggles and Hannah Montana. She selected a Poke bowl with brown rice, raw salmon, avocado, and house sauce for dinner. We ended the festivities with a best of both world cake, half vanilla and half chocolate. All in all another great birthday. We are so ready and hopeful.....2022 will be a very big year as we make up for lost time!  Enjoy a few pictures from today: Back to Kellisa's Path Blog

Kellisa Loves it Loud...Now

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     Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background.   It's easy to find Kellisa if there's loud music blasting from speakers because she will always wheel as close as she can and park herself for maximum exposure. This is true of every dance she attends and PE class at school when they play music in the gym. And she's not shy, if its not loud enough, she will ask for more volume.  Kellisa spent 113 days in the NICU with alarms and bells going off around the clock, so you might assume she was accustomed to loud noises from her early days. You'd be wrong. Kellisa was petrified of noise, any noise

Spiders

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   Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background.   Kellisa in her room (5/21/2021) Spiders.  Anyone who knows Kellisa, knows she loves spiders! What you might not know is where her love began. We can trace this obsession back to when we visited Grand Canyon National Park back in March 2006 . We were at the gift store and wanted Kellisa to pick out a souvenir T-shirt. The wall was covered with display shirts and Kellisa was immediately drawn to an orange shirt with a black, hairy spider with 8 legs sticking out the front. We were surprised by her choice and guided her to other shirts, but she kept coming back

True Friends

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Jenny Sloan had no idea she would be the 2nd guest blogger in the almost 10 year history of Kellisa's Path when she posted the following heartfelt words on her Facebook status tonight. The timing couldn't be better as we approach Kellisa's birthday. There was a time when I wondered "Why?" Kellisa survived when two of her siblings didn't. I eventually came to the conclusion Kellisa survived to make a difference! To make an impact! To inspire! To change the world!  We couldn't be prouder of Jenny who is also making the world a better place and we consider her an honorary daughter.    Appreciation post today for Kellisa. I got to talk to my best friend in the world today on facetime after an emergency plumbing accident and after calling everyone in my contacts, her dad, Chris Kain, was the only one to respond. 😂 When I tell you my heart could not possibly be fuller during that call, I mean it! I love this girl with all my f*cking heart. She is the one who mo

Best of Both Worlds Tour

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 Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background.   Like most 8-year-old girls in autumn 2007, Kellisa was obsessed with Hannah Montana. When it was announced that Hannah's Best of Both World Tour would stop in Jacksonville in January 2008, I knew we needed to be there.  We decided early on to let Kellisa live as normal of a life as possible, even if we didn't have to and/or it would be easier not to live life to the fullest. Kellisa would have never known Hannah was playing a concert so close, so it would have been easy to not go. But I knew and I also knew if Kellisa was a typical kid, she would know

The Lost D Sound

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 Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background.   Kellisa calls me "Ah" instead of dad or daddy. For those who haven't heard her call me Ah, I describe it as, "it's dad without the Ds." 20 years ago this month, Kellisa went in to the emergency room at Arnold Palmer Children's Hospital in Orlando, FL where it was determined she needed emergency brain surgery. Kellisa has gone through 23 surgeries in her almost 22 years of life, but in May 2001 it was her 7th total, and at the time, 5th brain surgery.  Before they wheeled her away for surgery, we found out that the insurance we ha

Spring Break 2010 (UT, AZ, & NM)

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Long overdue pictures from an amazing trip 11 years ago:  While flying to Las Vegas, our path included this view of the White Sands Missile Range (lower right) and White Sands National Monument (upper left). The entire route of the Bataan Memorial Death March can be seen in this photo: Zion National Park was the first stop of our 2nd annual father/daughter spring break vacation to the Southwest:

Growth on the Trails

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 Before we were going where wheels weren't meant to go, we were carrying Kellisa in our arms, over my shoulder, and in chest and back carriers. When Kellisa got too big to carry, we got her first chair. Since she uses her wheelchair everyday, it takes a beating and gets replaced every five years. In the early days, I pushed Kellisa on ADA trails and a few we had no business being on with a wheelchair. When Kellisa was maybe 5, we purchased the largest jog stroller we could find on a store shelf and we started pushing our abilities on real trails. As Kellisa was outgrowing her jog stroller, I spent many hours researching jog strollers for disabled children and young adults. We've purchased and outgrown many jog strollers and even broken a few on some pretty intense trails. As the market caught up to our activities, we purchased our first true off-road chair for real trails. Kellisa has even gone through several travel wheelchairs (easy to fold and only a few hundred dollars) ove