2009 (Kellisa's First 18 Years)

 

The Okefenokee Swamp - the Land of Trembling Earth.

 

One of our all-time favorite places to explore and we tried to start each year off with a visit. January 1, 2009, was no different and it would set the pace for what would become Kellisa's most adventurous year by far. 

 

Kellisa had outgrown even the largest baby jog strollers, and we broke two frames on a jog stroller made for special needs children. We needed a new solution and after many hours of research, we purchased a WIKE. The chair looks awesome and offers a ton of weather protection; however, it is not built for rugged trails. We still have it and it has its uses; it's just not an all-around mobility device for our needs.

 

Kellisa's 27th Birthday

May 23, 2026

 

Kellisa turned 27 years old today. We let her sleep in a little and ended up going out for a movie and dinner. Everyone enjoyed the new movie, Michael, about Michael Jackson. Instead of cake, we lived it up at  an ice cream shop on our way home where we sang Happy Birthday to Kellisa. Once home, Kellisa opened her cards and presents before spending the rest of the evening watching TV with her family in the living room.

 

Not bad for the 25 week micro-preemie.

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2008 (Kellisa's First 18 Years)

Kellisa went another calendar year without surgery.  

 

Hannah Montana came to Jacksonville in January. The concert sold out in minutes before we were able to buy tickets. We even tried to buy accessible tickets without success. I couldn’t pull the trigger to buy three tickets together that were selling for thousands online. It was breaking my heart that I didn’t have tickets for Kellisa. 

2007 (Kellisa's First 18 Years)

 

FINALLY!  

2007 was the first calendar year that passed without Kellisa having to endure surgery.

 

Kellisa really started to thrive with her newfound medical stability. She started taking dance lessons and it was obvious from the start that Kellisa has the heart of a dancer. Kellisa danced in her first recital, and she garnered the loudest cheers from the audience during the encore.

 

2006 (Kellisa's First 18 Years)

 

2006 started with Kellisa’s 4^th surgery in four months. Both hips were dislocated again, requiring another surgery of cutting bones, inserting screws, and hardware. It was followed with the same six brutal weeks of recovery.

 

After 18 months without a trip or trail, I was eager to get Kellisa back outside. I wanted to push our limits and see what we could do on trails. I even bought the largest baby jog stroller I could find so we wouldn’t have to use her wheelchair anymore. 

 

2005 (Kellisa's First 18 Years)

After a few good hikes in 2004, I thought 2005 would be our year to get out and explore. The outdoors would be ours!

 

I was wrong, very wrong!

 

The year started out with a surgery to remove the hardware from Kellisa hips. The six-week recovery period was as brutal as the original surgery. Thankfully, The Wiggles were there to help Kellisa through another difficult six weeks.

 

2004 (Kellisa's First 18 Years)

I was traveling a lot for work and when I had to spend the week before Memorial Day weekend in Atlanta, I invited Lisa and Kellisa to join me. It was a mini vacation. I could join them for lunch and evening swims after dinner. I started researching hikes with wheelchairs. I found a short accessible trail leading to a viewpoint of the highest waterfalls east of the Mississippi only an hour from Atlanta. Finished with work, we drove to the trail on Saturday morning.  I was bursting with excitement. I found a hike I could do with Kellisa. It was a beautiful trail, and I easily pushed Kellisa to the viewpoint. The waterfall was breathtaking. The endless mountain views were inspiring. Kellisa was having fun. This was Kellisa’s first wheeled hike on an accessible trail. I was disappointed beyond belief.

 

2003 - Part II (Kellisa's First 18 Years)

Kellisa wasn’t drinking and her only fluid intake was through the limited food she was eating. There was only so much pudding we could force into her mouth. She wasn’t thriving and required surgery to place a G-tube in the summer. With a G-tube, we would be able to give Kellisa the fluid she needed, and prescription formula would guarantee she would receive all the nutrition required to start growing. Of course, Kellisa suffered from complications that required a second surgery to remove the original G-tube and replace it with another. The doctor had been placing G-tubes for 26 years and Kellisa was the first patient to ever require a second surgery. Kellisa was an expert at confusing doctors.

 

2003 - Part I (Kellisa's First 18 Years)

 

Kellisa was slowly dying before our eyes and no one in the medical community was able to figure out what was wrong. 

 

Kellisa's smile and love of life were gone. She was battling high fevers for weeks. Nothing was bringing her temperature down to normal. She saw a doctor every few days and was in and out of the ER and hospitals without any relief. Once again, Kellisa was baffling the doctors. 

 

From early on, Lisa was convinced it was the shunt. After a CT scan and MRI, we were assured that the shunt was fine. Kellisa's shunt had been in place for a long enough time that a shunt infection was very unlikely. The neurosurgeon didn’t want to tap the shunt to check the cerebral fluid for an infection because if it wasn’t infected, the procedure itself carried a 2% risk of infecting the shunt. 

 

2002 (Kellisa's First 18 Years)

Kellisa finally went a year without brain surgery. However, her seizures took a turn for the worse. Kellisa spent five days in the hospital paralyzed after one seizure. The neurologist had no choice but to max out Kellisa’s medications to get the seizures under control. She continued to have seizures, just less frequent and severe with paralysis usually lasting less than an hour.

 

2000 & 2001 (Kellisa's First 18 Years)

 

Kellisa was up at midnight so she could welcome the new year, 2000, into her life since it was a major accomplishment and reason to celebrate.

 

Later in the day, we went to Blue Springs State Park about an hour from our home. We saw a sign that swimming was allowed in the spring, but there was also a warning about the possibility of alligators in the water. Florida was still very new to us and the idea of taking a plunge on New Year's Day into 72-degree water was appealing to me. 

 

1999 - Part III (Kellisa's First 18 Years)

We missed a lot during Kellisa's time in the NICU, but Lisa missed one of the moments that moms cherish and remember forever, getting discharged with their newborn. It wasn't the same, but a nurse wheeled Lisa out of the hospital with Kellisa on her lap. Even with oxygen, monitors, and wires everywhere, it was a beautiful moment.

 

The one normal thing we did was order a large wooden stork to be placed on our front lawn for Kellisa’s arrival. It was huge with a large red heart painted with Kellisa’s name and date of birth. When we arrived home, we took celebratory pictures of Kellisa with the stork in front of our house. After the pictures, Lisa carried Kellisa through our front door for the first time. Kellisa was home.

 

1999 - Part II (Kellisa's First 18 Years)

My dad wasn’t known for sharing his feelings. He kept them inside due to a rough childhood without a father. His father showed up unexpected to say “Goodbye” as my dad left for a tour in Vietnam, just in case my dad didn’t make it home alive. This was the last time my dad would see his father and I would never know my paternal grandfather.

 

My dad learned early and often how to keep his feelings from others. I can only remember him telling me that he loved me once and that was while he was hugging me right after Everett passed away. He whispered those three words into my ear. This would be the first of only three times I ever saw my dad cry. The second would be when my mom joined Everett 8 years later. The third was earlier in the day when he realized we lost Kirsten.

 

1999 - Part I (Kellisa's First 18 Years)

Lisa and I rarely purchase alcohol. We decided to buy a bottle of champagne on the last day of 1998. Before checking out, Lisa decided that she wanted to purchase a pregnancy test to be sure she wasn’t pregnant before taking her two sips of champagne to ring in 1999.

 

After many years of countless negative results, I failed to get excited while Lisa went through the process of completing the test. To our shock and excitement, the test came back positive. It was after 10pm on New Year’s Eve, but we wanted to be 100% sure before we got too excited. Lisa found a clinic open and we raced to have another test completed.

 

A Personal Wheelchair User's Experience Flying Southwest Airlines with Assigned Seats

SMF-AUS-MCI

May 9, 2026

MCI-PHX-SMF

May 15, 2026

 

Kellisa flew four segments last week on Southwest Airlines. This was her first trip since Southwest changed their seating policy to assigned seats. Kellisa has flown Southwest almost exclusively over the past 20 years. The only exceptions were trips to Hawaii and Alaska before Southwest started flying to the 49th and 50th states and one trip to Billings.