Egypt's Path (2010 to 2020) - VII

 

Egypt and Kellisa

Sisters Forever

Egypt's Path (2010 to 2020) - Part VI

 

Egypt Loves the Stage

Egypt's Path (2010 to 2020) - Part V

 

Early Art Projects

Shark Drawing

Sault Ste. Marie, ONT Canada

3 years, 4 months

Egypt's Path (2010 to 2020) - Part IV

Egypt ran away from us the first time she saw a pool and jumped right in the water. I took off right behind her and her head had already emerged with a gigantic ear to ear grin. She was a natural in the water. Since that day, Egypt has never passed up an opportunity to get wet- ice-cold water, wearing clothes, it doesn’t matter, she never hesitates to jump. I guess that’s not entirely true, spending her first 6 ½ years in Florida, Egypt always asked, “Do alligators live in this water?” before jumping in natural bodies of water.

Egypt's Path (2010 to 2020) - Part III

 Adoption Day

January 2011

Egypt's Path (2010 to 2020) - Part II

 November - December 2010

Dancing at Home

Egypt's Path (2010 to 2020) - Part I

Egypt's  Path  (2010 to 2020) - Part II

 HOME

2017 (Kellisa's First 18 Years)

Kellisa Keeps Her Side  and Reaches 18 

After moving across the country in 2016 and finishing our quest to hike in all 50 states, 2017 was still a year filled with many adventures  and fun times.

 

The year started out with some of Kellisa's hiking adventures featured in the new book, families on foot. We also went to Yosemite National Park for the first time, and the girls enjoyed Disney on Ice in Sacramento. Our family vacation for the year was a week in the Pacific Northwest where we visited several national parks and hiked with a large group of wheelchairs. Kellisa really enjoyed not being the only one in a chair on a trail.

 

2016 (Kellisa's First 18 Years)

Our family would relocate from Jacksonville, FL to Sacramento, CA in 2016 for my job. Our plan to move at the end of the kid's school year was changed when Lisa accepted a position that started in mid-January. 

 

After spending many New Year's Days exploring the Okefenokee Swamp, we spent the first day of 2016 at the Wichita Mountains Wildlife Refuge in Oklahoma.

 

We were driving Lisa's van to California over the long holiday weekend and chose a route that went through Oklahoma so Egypt could claim a new state visited and knock off another state that both girls hiked together.

 

2015 (Kellisa's First 18 Years)

The little girl who wasn't supposed to survive more than a few hours at most turned 16-years-old in May 2015. Kellisa endured 22 surgeries, countless seizures, and too many medical appointments and tests to count or even make an educated guess before arriving at her milestone birthday. 

 

Left & Middle- Blue Springs State Park

Right- Merritt Island National Wildlife Refuge

Kellisa's first wilderness experience happened on January 1, 2000, with a hike while attached to Lisa in a baby carrier at Blue Springs State Park, FL. 15 years later, to the day, we returned to the park for our first outdoor excursion of the year. We stopped at Merritt Island National Wildlife Refuge the following day on our drive back home.

2014 (Kellisa's First 18 Years)

 

Lisa was in the final stretch of completing her master’s degree and needed as much peace and quiet in the house as possible. I knew it would be easier to travel with both girls than to try and keep them quiet in the house. 

 

Egypt not only wanted to join her sister on her adventures, but it had become clear that Egypt also shared the same passion for travel, hiking, camping, and wildlife observations.

 

2013 (Kellisa's First 18 Years)

After Kellisa's cancer scare at the end of 2012, I wanted 2013 to be a big year for Kellisa. I had the idea of hiking a trail in all 50 states in one year and decided to make an attempt at that goal. 

 

We started with a 25K race across the desert in Big Bend National Park in January. Kellisa was the first wheelchair finisher in the history of the race. 

 

2012 (Kellisa's First 18 Years)

 After three surgeries in 2011, Kellisa was able to go another year without a surgery. 

 

We started the year off on the 1st of January with a day trip to the Okefenokee Swamp followed by a few local hikes, and Kellisa's first driving lesson in a golf cart.

 

Top Left- Chasing Egypt (Okefenokee Swamp)   Top Right- Julington-Durbin, Jacksonville, FL   Bottom- Golf cart driving lessons, Peace River, FL

 

2011 (Kellisa's First 18 Years)

 The year started off on a high note as Egypt’s adoption was finalized in January. 

2010 - Part II (Kellisa's First 18 Years)

Lisa received an unexpected phone call in October. “We know you’re only interested in school age children, but would you be interested in a 16-month-old girl?” 

 

They needed an answer immediately. I was out of town on business when Lisa called. Without hesitation or deep discussion, we agreed that we were interested. I was still out of town the next night when Lisa called and asked me, “Where can I find a hammer?”

 

Lisa needed the hammer to build our crib, just in case we were chosen as the family for this little girl. Instead of saying, “You don’t need a hammer to build the crib,” I told Lisa where to find a hammer. I also figured we had zero chance of getting the girl.

  

2010 - Part I (Kellisa's First 18 Years)

 We continued submitting on children into the new year without any success. We were lucky if we received an automatic email reply with the subject, "Your Submittal Has Been Received". 

 

Our first trip of the year was during Kellisa's spring break a week after I completed my 2nd Bataan Memorial Death March. The first weekend was also Easter, so we spent a few days in Texas visiting family before Lisa went home and Kellisa and headed for a week in the Southwest. While in Texas, we went for a nice hike at Brazos Bend State Park where we enjoyed its abundant birds and alligators.

 

2009 (Kellisa's First 18 Years)

 

The Okefenokee Swamp - the Land of Trembling Earth.

 

One of our all-time favorite places to explore and we tried to start each year off with a visit. January 1, 2009, was no different and it would set the pace for what would become Kellisa's most adventurous year by far. 

 

Kellisa had outgrown even the largest baby jog strollers, and we broke two frames on a jog stroller made for special needs children. We needed a new solution and after many hours of research, we purchased a WIKE. The chair looks awesome and offers a ton of weather protection; however, it is not built for rugged trails. We still have it and it has its uses; it's just not an all-around mobility device for our needs.

 

Kellisa's 27th Birthday

May 23, 2026

 

Kellisa turned 27 years old today. We let her sleep in a little and ended up going out for a movie and dinner. Everyone enjoyed the new movie, Michael, about Michael Jackson. Instead of cake, we lived it up at  an ice cream shop on our way home where we sang Happy Birthday to Kellisa. Once home, Kellisa opened her cards and presents before spending the rest of the evening watching TV with her family in the living room.

 

Not bad for the 25 week micro-preemie.

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2008 (Kellisa's First 18 Years)

Kellisa went another calendar year without surgery.  

 

Hannah Montana came to Jacksonville in January. The concert sold out in minutes before we were able to buy tickets. We even tried to buy accessible tickets without success. I couldn’t pull the trigger to buy three tickets together that were selling for thousands online. It was breaking my heart that I didn’t have tickets for Kellisa. 

2007 (Kellisa's First 18 Years)

 

FINALLY!  

2007 was the first calendar year that passed without Kellisa having to endure surgery.

 

Kellisa really started to thrive with her newfound medical stability. She started taking dance lessons and it was obvious from the start that Kellisa has the heart of a dancer. Kellisa danced in her first recital, and she garnered the loudest cheers from the audience during the encore.

 

2006 (Kellisa's First 18 Years)

 

2006 started with Kellisa’s 4^th surgery in four months. Both hips were dislocated again, requiring another surgery of cutting bones, inserting screws, and hardware. It was followed with the same six brutal weeks of recovery.

 

After 18 months without a trip or trail, I was eager to get Kellisa back outside. I wanted to push our limits and see what we could do on trails. I even bought the largest baby jog stroller I could find so we wouldn’t have to use her wheelchair anymore. 

 

2005 (Kellisa's First 18 Years)

After a few good hikes in 2004, I thought 2005 would be our year to get out and explore. The outdoors would be ours!

 

I was wrong, very wrong!

 

The year started out with a surgery to remove the hardware from Kellisa hips. The six-week recovery period was as brutal as the original surgery. Thankfully, The Wiggles were there to help Kellisa through another difficult six weeks.

 

2004 (Kellisa's First 18 Years)

I was traveling a lot for work and when I had to spend the week before Memorial Day weekend in Atlanta, I invited Lisa and Kellisa to join me. It was a mini vacation. I could join them for lunch and evening swims after dinner. I started researching hikes with wheelchairs. I found a short accessible trail leading to a viewpoint of the highest waterfalls east of the Mississippi only an hour from Atlanta. Finished with work, we drove to the trail on Saturday morning.  I was bursting with excitement. I found a hike I could do with Kellisa. It was a beautiful trail, and I easily pushed Kellisa to the viewpoint. The waterfall was breathtaking. The endless mountain views were inspiring. Kellisa was having fun. This was Kellisa’s first wheeled hike on an accessible trail. I was disappointed beyond belief.

 

2003 - Part II (Kellisa's First 18 Years)

Kellisa wasn’t drinking and her only fluid intake was through the limited food she was eating. There was only so much pudding we could force into her mouth. She wasn’t thriving and required surgery to place a G-tube in the summer. With a G-tube, we would be able to give Kellisa the fluid she needed, and prescription formula would guarantee she would receive all the nutrition required to start growing. Of course, Kellisa suffered from complications that required a second surgery to remove the original G-tube and replace it with another. The doctor had been placing G-tubes for 26 years and Kellisa was the first patient to ever require a second surgery. Kellisa was an expert at confusing doctors.

 

2003 - Part I (Kellisa's First 18 Years)

 

Kellisa was slowly dying before our eyes and no one in the medical community was able to figure out what was wrong. 

 

Kellisa's smile and love of life were gone. She was battling high fevers for weeks. Nothing was bringing her temperature down to normal. She saw a doctor every few days and was in and out of the ER and hospitals without any relief. Once again, Kellisa was baffling the doctors. 

 

From early on, Lisa was convinced it was the shunt. After a CT scan and MRI, we were assured that the shunt was fine. Kellisa's shunt had been in place for a long enough time that a shunt infection was very unlikely. The neurosurgeon didn’t want to tap the shunt to check the cerebral fluid for an infection because if it wasn’t infected, the procedure itself carried a 2% risk of infecting the shunt. 

 

2002 (Kellisa's First 18 Years)

Kellisa finally went a year without brain surgery. However, her seizures took a turn for the worse. Kellisa spent five days in the hospital paralyzed after one seizure. The neurologist had no choice but to max out Kellisa’s medications to get the seizures under control. She continued to have seizures, just less frequent and severe with paralysis usually lasting less than an hour.

 

2000 & 2001 (Kellisa's First 18 Years)

 

Kellisa was up at midnight so she could welcome the new year, 2000, into her life since it was a major accomplishment and reason to celebrate.

 

Later in the day, we went to Blue Springs State Park about an hour from our home. We saw a sign that swimming was allowed in the spring, but there was also a warning about the possibility of alligators in the water. Florida was still very new to us and the idea of taking a plunge on New Year's Day into 72-degree water was appealing to me. 

 

1999 - Part III (Kellisa's First 18 Years)

We missed a lot during Kellisa's time in the NICU, but Lisa missed one of the moments that moms cherish and remember forever, getting discharged with their newborn. It wasn't the same, but a nurse wheeled Lisa out of the hospital with Kellisa on her lap. Even with oxygen, monitors, and wires everywhere, it was a beautiful moment.

 

The one normal thing we did was order a large wooden stork to be placed on our front lawn for Kellisa’s arrival. It was huge with a large red heart painted with Kellisa’s name and date of birth. When we arrived home, we took celebratory pictures of Kellisa with the stork in front of our house. After the pictures, Lisa carried Kellisa through our front door for the first time. Kellisa was home.

 

1999 - Part II (Kellisa's First 18 Years)

My dad wasn’t known for sharing his feelings. He kept them inside due to a rough childhood without a father. His father showed up unexpected to say “Goodbye” as my dad left for a tour in Vietnam, just in case my dad didn’t make it home alive. This was the last time my dad would see his father and I would never know my paternal grandfather.

 

My dad learned early and often how to keep his feelings from others. I can only remember him telling me that he loved me once and that was while he was hugging me right after Everett passed away. He whispered those three words into my ear. This would be the first of only three times I ever saw my dad cry. The second would be when my mom joined Everett 8 years later. The third was earlier in the day when he realized we lost Kirsten.

 

1999 - Part I (Kellisa's First 18 Years)

Lisa and I rarely purchase alcohol. We decided to buy a bottle of champagne on the last day of 1998. Before checking out, Lisa decided that she wanted to purchase a pregnancy test to be sure she wasn’t pregnant before taking her two sips of champagne to ring in 1999.

 

After many years of countless negative results, I failed to get excited while Lisa went through the process of completing the test. To our shock and excitement, the test came back positive. It was after 10pm on New Year’s Eve, but we wanted to be 100% sure before we got too excited. Lisa found a clinic open and we raced to have another test completed.

 

A Personal Wheelchair User's Experience Flying Southwest Airlines with Assigned Seats

SMF-AUS-MCI

May 9, 2026

MCI-PHX-SMF

May 15, 2026

 

Kellisa flew four segments last week on Southwest Airlines. This was her first trip since Southwest changed their seating policy to assigned seats. Kellisa has flown Southwest almost exclusively over the past 20 years. The only exceptions were trips to Hawaii and Alaska before Southwest started flying to the 49th and 50th states and one trip to Billings.

"A Day of Flights"

9 years ago...1/3 of Kellisa's life has gone by since we gave her the present of "A Day of Flights." May 16, 2017 was one of the greatest days of Kellisa’s life and I haven't been able to come up with a better birthday celebration, despite many hours of racking my brain.

After many months of planning and finally pulling off the day better than I dreamed, I was struggling to post about it. Thankfully, Lisa came to the rescue and for the first time in this blog's history, Lisa has written a post and it captures the day and our gift of flights to Kellisa for her birthday better than I could have ever done. *This is also by far the most popular post on our little blog.

North American Travel Journalists Association - May 2026 Featured Member

Click on the picture to read the brief interview.

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Trans-Siberian Orchestra - The Ghosts of Christmas Eve

 

Golden 1 Center

Sacramento, CA

November 28, 2025

3pm

 

Lisa and I saw Trans-Siberian Orchestra back in Jacksonville in 2010, but we could only stay for the first half of the show because we had to get home for the baby-sitter. You will never see another “baby-sitter” typed on the blog because this was the only evening ever that we had someone watch the kids while we went out. I take that back, grandma watched Kellisa and Egypt while they slept once so Lisa and I could see a midnight showing of The Rocky Horror Picture Show.

"Accessible doesn't always mean ADA compliant"

 

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A Wheelchair Accessibility Guide to Palm Springs and Joshua Tree National Park

Three years ago, Kellisa and I had a week open for adventure. We decided to spend our time down in the Palm Springs area to explore some new areas while making a return visit to Joshua Tree National Park. Thanks to COVID, this would be Kellisa's first flight in 50 months, by far the longest she ever went without being on an airplane. 

We had such a great time, we thought we would share our guide to the Palm Springs region again for our readers.

Thanksgiving 2025 on the Bay

For the second year in a row, we made the drive to Pier 3 in San Francisco to board a boat for a buffet style Thanksgiving feast while cruising around the bay. The highlights included sailing under the Golden Gate Bridge and a close pass of Alcatraz Island. The food was outstanding and we enjoyed some after dinner music and dancing. We also took advantage of the surroundings for several “photo shoots.” I think a tradition has taken root.

 

Lookout Mountain Incline Railway

 Lookout Mountain Incline Railway

Chattanooga, TN

November 2010

Little River Canyon

 Little River Canyon National Preserve

Alabama

November 2010

Russell Cave

 Russell Cave National Monument

Alabama

November 2010

TEST POST - BACK DATED

 

Swimming with Pigs

Bahamas

May 30, 2025

to

June 7, 2025

Swimming with Pigs in the Bahamas was a dream father-daughter trip for Egypt for many years and we finally made it happen in 2025. I decided to use most of my airline and hotel points to give Egypt a special trip since she had been asking for this for many years and I realize that one of these trips will be our last trip as she starts her adult life in the near future. I'll still hope for many more.

Heart-Shaped Stone

This is the mysterious story of Kellisa’s 25^th surgery which took place in February 2025 at Suter Roseville Medical Center. The surgery lasted three hours when the surgeon told us it should only take 60 minutes.

October 2024 – Kellisa had her first riding horse therapy session in more than 10 years and loved getting back in the saddle. Unfortunately, she started complaining of pain in her hips shortly after the ride. We took her to the doctor when the pain didn’t go away after a few days, and pain relievers weren’t helping. Tests were run and a few x-rays were taken. Nothing was obvious as far as her pain in the hip area, but in the corner of one of the x-rays, the radiologist saw something they couldn’t explain. A dark area of the stomach led them to believe a foreign object was “trapped” and would require further investigation.

Can't Wait