2003 - Part I (Kellisa's First 18 Years)

 

Kellisa was slowly dying before our eyes and no one in the medical community was able to figure out what was wrong. 

 

Kellisa's smile and love of life were gone. She was battling high fevers for weeks. Nothing was bringing her temperature down to normal. She saw a doctor every few days and was in and out of the ER and hospitals without any relief. Once again, Kellisa was baffling the doctors. 

 

From early on, Lisa was convinced it was the shunt. After a CT scan and MRI, we were assured that the shunt was fine. Kellisa's shunt had been in place for a long enough time that a shunt infection was very unlikely. The neurosurgeon didn’t want to tap the shunt to check the cerebral fluid for an infection because if it wasn’t infected, the procedure itself carried a 2% risk of infecting the shunt. 

 

2002 (Kellisa's First 18 Years)

Kellisa finally went a year without brain surgery. However, her seizures took a turn for the worse. Kellisa spent five days in the hospital paralyzed after one seizure. The neurologist had no choice but to max out Kellisa’s medications to get the seizures under control. She continued to have seizures, just less frequent and severe with paralysis usually lasting less than an hour.

 

2000 & 2001 (Kellisa's First 18 Years)

 

Kellisa was up at midnight so she could welcome the new year, 2000, into her life since it was a major accomplishment and reason to celebrate.

 

Later in the day, we went to Blue Springs State Park about an hour from our home. We saw a sign that swimming was allowed in the spring, but there was also a warning about the possibility of alligators in the water. Florida was still very new to us and the idea of taking a plunge on New Year's Day into 72-degree water was appealing to me. 

 

1999 - Part III (Kellisa's First 18 Years)

We missed a lot during Kellisa's time in the NICU, but Lisa missed one of the moments that moms cherish and remember forever, getting discharged with their newborn. It wasn't the same, but a nurse wheeled Lisa out of the hospital with Kellisa on her lap. Even with oxygen, monitors, and wires everywhere, it was a beautiful moment.

 

The one normal thing we did was order a large wooden stork to be placed on our front lawn for Kellisa’s arrival. It was huge with a large red heart painted with Kellisa’s name and date of birth. When we arrived home, we took celebratory pictures of Kellisa with the stork in front of our house. After the pictures, Lisa carried Kellisa through our front door for the first time. Kellisa was home.

 

1999 - Part II (Kellisa's First 18 Years)

My dad wasn’t known for sharing his feelings. He kept them inside due to a rough childhood without a father. His father showed up unexpected to say “Goodbye” as my dad left for a tour in Vietnam, just in case my dad didn’t make it home alive. This was the last time my dad would see his father and I would never know my paternal grandfather.

 

My dad learned early and often how to keep his feelings from others. I can only remember him telling me that he loved me once and that was while he was hugging me right after Everett passed away. He whispered those three words into my ear. This would be the first of only three times I ever saw my dad cry. The second would be when my mom joined Everett 8 years later. The third was earlier in the day when he realized we lost Kirsten.