Yesterday and Today

Below are some pictures taken in the Neonatal Intensive Care Unit of RUSH Hospital in Chicago shortly after Kellisa was born on May 23, 1999. We recreated the pictures to have some fun while celebrating her 18th birthday on May 23, 2017. 

Kellisa Reaches 18

Lisa Marie Kain

May 23, 2017 - Kellisa's 18th birthday! A huge accomplishment and cause for us to be proud as we celebrate her life to this point. I've been agonizing about my post for this day since I was at a loss for a narrative. Lisa came to the rescue and for the first time in this blog's history, Lisa has written a post about this day and our gift of flights to Kellisa for her birthday.

Lisa's words:

On May 16th, we spent an entire day flying around the country to celebrate Kellisa's 18th birthday. 

By now, you may realize that Chris is a bit extreme when it comes to travel. Several months ago, he started talking with Southwest Airlines (his carrier of choice) about the potential to fly as many commercial flights as possible in one day. At that point, he had been working on the plan for a while but realized he needed their help to perfect the route. They were very supportive. A route was selected, and tickets were purchased. I was informed of this plan after the arrangements had been firmed up with Southwest. Chris knows I do not like to travel and gave me limited information about what the day would entail. When I decided to participate, I told him I did not want to know the specifics because I could not handle the truth. If I had any idea, I never would have gone on this trip, but I am so glad I did.

A Promise Fulfilled (2016)

Our family would relocate from Jacksonville, FL to Sacramento, CA in 2016 for my job. Our plan to move at the end of the kid's school year was changed when Lisa accepted a position that started in mid-January. 

After spending many New Year's Days exploring the Okefenokee Swamp, we spent the first day of 2016 at the Wichita Mountains Wildlife Refuge in Oklahoma.

We were driving Lisa's van to California over the long holiday weekend and chose a route that went through Oklahoma so Laurel could claim a new state visited and knock off another state that both girls hiked together.

As a micro-preemie, I promised Kellisa that we would visit all 50 states by her 18th birthday. Later, I would expand the original promise with the addition of both girls hiking at least one trail in each state. In fact, with Kellisa's 18th birthday less than 18 months away, 2016 was mostly filled with our move, getting settled, and hiking in the remaining states. 

After Oklahoma, the girls had 11 states remaining to hike together and by Thanksgiving, after visiting Arizona, Utah, Nevada, New York, Massachusetts, New Hampshire, Vermont, Iowa, Illinois, Hawaii, and Alaska, that number would be zero!

Evening of Dreams- 2017

"Under the Sea"

Sacramento, CA

May 20, 2017

Sweet 16 (2015)

The little girl who wasn't suppose to survive more than a few hours at most turned 16-years-old in May 2015. Kellisa endured 22 surgeries, countless seizures, and too many medical appointments and tests to count or even make an educated guess before arriving at her milestone birthday. 

Kellisa's first wilderness experience happened on January 1, 2000 with a walk attached to mom's stomach at Blue Springs State Park, FL. 15 years later, to the day, we returned to the park for our first outdoor excursion of the year. We stopped at Merritt Island National Wildlife Refuge the following day on our drive back home.

Left & Middle- Blue Springs State Park   Right- Merritt Island National Wildlife Refuge

Forever Sisters (2014)

Lisa was in the final stretch of completing her master’s degree and needed as much peace and quiet in the house as possible. I knew it would be easier to travel with both girls than to try and keep them quiet in the house. 

Laurel not only wanted to join her sister on her adventures, but it had become clear that Laurel also shared the same passion for travel, hiking, camping, and wildlife observations.

As the year started, I was entertaining the idea of hiking a trail in all 50 states with both girls during the 2014 calendar year. 

I was in the early planning stages when we went on our semi-traditional hike in the Okefenokee Swamp on New Years Day. It's interesting how the girls can fight in the backseat as we're driving down the road, but as soon as we hit the trail, they are best friends and love each other. Laurel loves to help Kellisa by pushing her and she even has a great ability to get Kellisa more verbal than usual and has a knack for teaching her new words. Kellisa really responds to Laurel in the wilderness and enjoys it when Laurel pushes her. She really cracks up when they hit a rock or root, I think she thinks it's Laurel doing it on purpose and she's probably right, at least some of the time.

"Sometimes My Dad Forgets Me" (2013)

After Kellisa's cancer scare at the end of 2012, I wanted 2013 to be a big year for Kellisa. I had the idea of hiking a trail in all 50 states in one year and decided to make an attempt at that goal. 

We started with a 25K race across the desert in Big Bend National Park in January. Kellisa was the first wheelchair finisher in the history of the race. 

Laurel joined us on several hikes, including across an ice road in Voyageurs National Park and a 4.2 mile race across frozen Lake Superior to an island and back in Wisconsin. 

I also took Laurel on a few trips without Kellisa to attempt to keep things fair.

Kellisa's 18th Birthday Tour on Southwest Airlines

I'm sure most people don't travel from Tampa to Sacramento by commercial airlines and purposely schedule 8 stops along the way, but Kellisa is not most people. Kellisa loves to travel by any and all means as often as possible, but flying is probably her favorite. We were in the middle of our cross country move last year when Kellisa turned 17 and didn't really do anything special. Kellisa did have a huge Sweet 16 Adventure  and I wanted to top that weekend for her. Kellisa loves severe turbulence, but I couldn't guarantee a flight or flights with enough turbulence to make her happy, so I thought about how much she loves takeoffs and landings...especially if they're rough. Next thing I knew, I was researching on Southwest.com to see how many segments we could schedule for one day with as few change of planes and tight connections as possible since it's very difficult to transfer and run through airports with Kellisa. I reached out to Southwest for help on routing after spending many hours online and after a few weeks of back and forth emails, I selected the above itinerary because it allowed us to stay on the same plane the entire day. Southwest really came through for us.

Kellisa's stat line for the day: 

Naps- 0   Seizures- 3   Flight Segments- 8   Hours on Plane- 20 1/2   Total Awake Hours- Exactly 24

Much, Much more will be released about this day in the coming days and weeks!

Back to Kellisa's Path Blog

5 Years? (2012)

After three surgeries in 2011, Kellisa was able to go another year without a surgery. 

We started the year off on the 1st of January with a day trip to the Okefenokee Swamp followed by a

few local hikes, and Kellisa's first driving lesson in a golf cart.

Top Left- Chasing Laurel (Okefenokee Swamp)   Top Right- Julington-Durbin, Jacksonville, FL   Bottom- Golf cart driving lessons, Peace River, FL

Our Expanding Universe (2011)

The year started off on a high note as Laurel’s adoption was finalized in January.