Sunday, January 19, 2014

Land Between the Lakes National Recreation Area


Cedar Pond
Tennessee

January 2014


 After our hike in Kentucky, we headed to the Tennessee half of the Land Between the Lakes with a nice side trip to the Bison and Elk Prairie. The girls were very excited to see the bison so close to the car and Laurel was very proud of herself for sighting an elk who was well hidden in the forest.











We didn't have a lot of time left on this cold and windy day for our hike in Tennessee, so we stopped just over the border at the Cedar Pond picnic area. There was a little trail around the pond that we extended a little off-trail to get our mile hike completed. Laurel was very fascinated by the ice on the pond. She could see fish swimming under the ice and wanted to know how they could survive. Laurel also enjoyed throwing sticks across the ice and even banging a hole with one. Kellisa enjoyed the trail, especially the off-trail sections.


























Tuesday, January 7, 2014

The Wiggles Sailing Around the World 2006

St. Pete Times Forum
Tampa, FL

Saturday, November 18, 2006



Because The Wiggles skipped Jacksonville in 2006, we drove down to Tampa so Kellisa could see the tour.

To see a few pictures from the concert (Click here).








Thursday, January 2, 2014

Okefenokee National Wildlife Refuge

Georgia
January 1, 2014


I first had the idea to hike in all 50 states in 12 months last year. My plan only included Kellisa because I didn't think Laurel was ready for such an ambitious plan. I knew everything had to go just right because we had zero room for complications (sickness, flight delays, weather, lost/broken equipment, unforeseen school/family/job obligations, etc.). 

We got off to a great start, hiking in 11 states, but then the unexpected happened. Laurel told an aunt and uncle that, "sometimes my dad forgets me". I already felt guilty for leaving her behind, but in my mind I was making up for it by taking just Laurel on father-daughter trips. Since I didn't want Laurel to feel "forgotten", we abandoned our 2013 all 50 states plan.

We decided to start over in 2014, this time including Laurel. Besides the adventure, I want to document how the girls are treated on our travels. I often complain of the horrible treatment, but haven't spent much time on the people who do care and help. I'll be interested in our final numbers and observations for the good and evil that we encounter as we travel across the United States.

Our first trip was on the first day of 2014. We drove to the Okefenokee National Wildlife Refuge for a hike on the newly opened Chesser Island Boardwalk. The original boardwalk was destroyed by a wildfire and the new boardwalk had been open for less than 2 months. This would also be our first trip with Kellisa's new "travel" wheelchair. Her previous chair was destroyed by an airline, but it was replaced in full by the airline. (More pictures and videos) 



Thursday, December 19, 2013

Bloomingdale Bog Trail

Adirondacks
 
 
New York
 
September 2013
 
 
 
 
 
 
"It takes a lot of effort just to start a hike with Kellisa and I wasn't going to let a little water stop us from having a nice hike. If we turned around without getting wet, it would have been too late to find another trail. We could have gone back to our nice warm hotel room...but why would we do that?"
 

Friday, November 22, 2013

Bridal Veil Falls Provincial Park

British Columbia
Canada

October 2013





A short, but steep trail to the base of a waterfall would be our last hike on our trip to British Columbia. (Read more)

Sunday, November 17, 2013

Sasquatch Provincial Park

British Columbia
Canada

October 2013




In addition to people (always my biggest worry in the forest), bears (black and grizzly) and mountain lions, we had to worry about crossing paths with bigfoot on this early autumn morning. (Read more)

Friday, November 15, 2013

Coquihalla Canyon Provincial Park

British Columbia, Canada

October 2013






After spending a few hours at Hell's Gate Airtram, we drove to Coquihalla Canyon Provincial Park to hike the Othello Tunnels Rail to Trail. (Read more)

Friday, November 8, 2013

Big Bend 25K

Big Bend National Park
Texas

When: January 19, 2014





Kellisa and Chris are registered for their 2nd Big Bend 25K. (Read more)


Thursday, November 7, 2013

Hell's Gate Airtram

Boston Bar
British Columbia, Canada

October 2013





"We had to travel where no human should venture for surely we have encountered the gates of hell". -Simon Fraser, 1808 (Read More)

Wednesday, November 6, 2013

Harrison Hot Springs Resort & Spa

Harrison Hot Springs
British Columbia, Canada

October 2013




After presenting "Kellisa's Path" to the Seattle Hydrocephalus Association, we had a few days before we had to head home. Our original plan was to hike in Washington's National Parks, but the government shutdown forced us to change our plans. We didn't let the government ruin (Read More)

Friday, October 25, 2013

Bilateral VDRO

Wolfsons Children's Hospital
Jacksonville, FL

Sept. 2003 - Jan. 2005 - Feb. 2006 - Jan. 2011





Kellisa was a little beyond her 4th birthday when she had her 13th surgery. Heading into her first surgery on her hips, Kellisa already had seven brain (including two for an infected shunt), one heart, (Read More)

Thursday, October 24, 2013

113 Days in Pictures

Neonatal Intensive Care Unit (NICU)

Rush Presbyterian- St. Lukes
Chicago, IL

May 23, 1999 to September 13, 1999




The following pictures tell the story of our little warrior's first 113 days which were spent in the NICU. Many stories can be written about what Kellisa went through (Read More)



Friday, August 16, 2013

The Narrows

The Narrows


Zion National Park
Utah


May 2013



This was Kellisa's second visit to Zion National Park


Our goal for this trip was to hike/raft part of the Narrows trail. The National Park Service makes it clear that flotation devices and rafts are not allowed in the Narrows. I wrote to the chief ranger and explained our situation and provided a link to this blog. The ranger responded that her first thought was to answer no, but after looking at our experience, she decided that if anyone could do the Narrows with a disabled person, it was us. The ranger had one condition, we needed another hiker for safety reasons. This wasn't a problem because we had already recruited Primo Matt to be our partner.

We used the Freedom Push Chair for the mile long paved trail to the start of the Narrows:



Getting the 1 person raft ready:


Kellisa loved the raft:



Safety first:


The entire hike in the water was like hiking on wet, slick bowling balls. Every foot placement took careful thought and consideration. 

Here we go:


The first rapids we encountered:


Calmer waters:


More rapids:



It may not look like much, but the water was really flowing on this beautiful afternoon and the rapids below were a little too strong for my liking. I had to play it safe and carry Kellisa around the rapids:


Of course, Kellisa didn't mind:


Back in the raft:


Matt hiking along side Kellisa:


Kellisa's view from the raft:



Back at the beginning of the Narrows:


Matt taking pictures:


I cooled off in the freezing water as Kellisa enjoyed her last minutes in the raft:


Pictures 4 - 5 - 6 - 7 - 8 - 9 - 10 - 11 - 12 - 13 - 14 - 20 (courtesy of Matt Buckingham)

Casie Forbes from the St. George, Utah newspaper- The Spectrum, met us at the visitor center after our hike for an interview. Casie's story appeared in the Memorial Day edition and a week later, the story was picked up by the AP and ran in papers across the country. 

A huge thank you to Casie (sorry we were two hours late, it was a lot harder than we imagined), Matt, Egypt and Lisa!


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