Friday, May 21, 2021

Spiders

  Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background. 

Kellisa in her room (5/21/2021)
Spiders. 

Anyone who knows Kellisa, knows she loves spiders!

What you might not know is where her love began.

We can trace this obsession back to when we visited Grand Canyon National Park back in March 2006. We were at the gift store and wanted Kellisa to pick out a souvenir T-shirt. The wall was covered with display shirts and Kellisa was immediately drawn to an orange shirt with a black, hairy spider with 8 legs sticking out the front. We were surprised by her choice and guided her to other shirts, but she kept coming back to the creepiest shirt on the wall to the point she was adamant on her choice. Lisa made the purchase and Kellisa was happy.

Kellisa wore the shirt with pride and loved all the attention. She loved that most people acted scared and shocked because the spider was so large and realistic looking. She wore that shirt every chance she got and we finally had to retire it many months after she outgrew it. We still have the shirt safely packed away somewhere in our garage. When we returned to the Grand Canyon in June 2010, we hoped to buy the same shirt in a larger size, but were disappointed to find the shirt no longer sold at the gift shop.  

Over the years, Kellisa has added to her shirt collection with all kinds of creepy shirts. Her vast collection includes spiders, snakes, lizards, alligators, sharks, bees...really anything that would scare the average person. Kellisa's collection has grown to include realistic decorations all over her bedroom. At any given time, you can find a rattlesnake lurking from under her bed to a flying bat circling her ceiling to a giant tarantula staring at you from some dark corner. We never know what we might see in her room and joke that if a real creature somehow got loose in her room, we'd never know it was alive. Kellisa also has an impressive scientific book collection featuring all the creatures she loves. Kellisa can spend hours flipping through her books looking at the realistic photographs.  

Kellisa's room is just how she loves it and we need to warn people before they enter her room. They usually look at us like we're crazy and probably think, "How scary can it be?" which is usually followed with a gasp or two, then thanking us for the warning.

Kellisa also loves visiting zoos with the snake house her favorite exhibit. We've even visited a bug museum once. Her younger sister, Egypt has always been around Kellisa and her unusual interests and also loves creepy creatures. I need to pry them away from the snake exhibit if we happen to stumble upon an active snake...they could watch for hours. 

Despite wearing that original spider shirt dozens, if not hundreds of times over the few years it fit, we cannot find a single picture of Kellisa wearing it. I also spent too much time unsuccessfully trying to find an image of the T-shirt online. I'll update this post (and probably write another) when we come across her shirt someday when going through the kid's clothes in the garage.


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Wednesday, May 19, 2021

True Friends

Jenny Sloan had no idea she would be the 2nd guest blogger in the almost 10 year history of Kellisa's Path when she posted the following heartfelt words on her Facebook status tonight. The timing couldn't be better as we approach Kellisa's birthday. There was a time when I wondered "Why?" Kellisa survived when two of her siblings didn't. I eventually came to the conclusion Kellisa survived to make a difference! To make an impact! To inspire! To change the world! 

We couldn't be prouder of Jenny who is also making the world a better place and we consider her an honorary daughter. 

  Appreciation post today for Kellisa. I got to talk to my best friend in the world today on facetime after an emergency plumbing accident and after calling everyone in my contacts, her dad, Chris Kain, was the only one to respond. 😂

When I tell you my heart could not possibly be fuller during that call, I mean it! I love this girl with all my f*cking heart. She is the one who motivates me to keep pushing on. She is the one that keeps me kind, keeps me inspired, keeps me loving and myself. I wouldn't be alive without her. Middle school is around the time you develop yourself. I met Kellisa in the 7th grade. We are 22 now. I would not be who I am without her massive impact on my person. I will be FOREVER grateful for that. I am the person I am today because of her. I missed her laugh so dearly, I was so ecstatic to hear it after so long. I missed her blowing kisses, and I heard her speak my name for the first time in a year. Tears. Kellisa, you mean the entire world to me. I can't imagine life without you and you just reminded me tonight how beautiful, special, and lovely you and your family are to me and everyone else in this world. I love you.  ♥️












Tuesday, May 18, 2021

Best of Both Worlds Tour

 Kellisa turns 22 on May 23rd and due to the ongoing pandemic, we do not have anything big planned for the second year in a row. I came up with the idea to share a few Kellisa stories in the week leading up to her big day. I'd like to post one a day, but only have two planned so far. These might be stories shared for the first time or stories that can be found elsewhere, but I'll add new details and/or more background. 

Like most 8-year-old girls in autumn 2007, Kellisa was obsessed with Hannah Montana. When it was announced that Hannah's Best of Both World Tour would stop in Jacksonville in January 2008, I knew we needed to be there. 

We decided early on to let Kellisa live as normal of a life as possible, even if we didn't have to and/or it would be easier not to live life to the fullest. Kellisa would have never known Hannah was playing a concert so close, so it would have been easy to not go. But I knew and I also knew if Kellisa was a typical kid, she would know and would be begging and pleading for tickets. 

I was at my computer several minutes before the tickets went on sale with my credit card propped up so I didn't have to go looking for my wallet once I selected the tickets. At 10am exactly, I started furiously clicking away and each time I was turned away. I knew the show would sell out in minutes. I started to get nervous after 3 or 4 minutes and still no tickets. Any hope of being on the floor and close to the stage faded and within about 10 minutes, the show was sold out. I failed to get tickets for Kellisa. I was devastated, but at least she would never know, right? 

I sent an email to the arena explaining how my daughter uses a wheelchair and asked if there was any chance of getting special seating. Not surprisingly, when they wrote back, I was advised that all the wheelchair seating had sold out as well. 

At least Kellisa would never know what she missed. That was the story I tried telling myself, but I couldn't help feeling like I let her down. I didn't realize it at the time, but the mental torture in my head was being suffered by parents across the country as a ticket controversy was growing. Due to unprecedented demand for Hannah Montana tickets, brokers where buying many of the tickets before the general pubic had a chance and turning around to sell them online for hundreds and even thousands of dollars. I never had a fair chance and that did not help my mental state.

Jacksonville was no different than any other city, Hannah tickets on the secondary market ranged from $300+ up in the nose bleed sections to several thousand a ticket to be on the arena floor. I wanted Kellisa to be in the building, but I also wanted her to have a chance to see the stage. 

I became obsessed- watching eBay several times a day, every day, hoping to find a deal or maybe the prices would drop as the concert date approached. Neither of which ever happened.

The Jacksonville date was a Wednesday. A school night. I had taken the day off of work, just in case I figured out a way to attend. For months, I was searching for 3 tickets so Lisa and I could go with Kellisa, but since we were now out of time, I searched for 2 tickets together. I figured one parent and Kellisa was better than not going at all, but 2 tickets were just as much or more compared to 3. I started getting crazy thoughts of paying the exorbitant prices. I knew Lisa would be mad, but I was thinking about the old, "Easier to ask for forgiveness than permission" tactic.

A light bulb went off before I could do anything to get myself in trouble, I decided to look for any single tickets. I found one in the upper sections for face value and bought it. I looked for more and found another in the middle sections for 2 or 3 times face value. I bought that one too. I kept searching and a 3rd single seat became available, this time on the floor for 5 times face value. I now had 3 tickets. But first, I had to get some cash from the bank and drive around the greater Jacksonville area like a madman to actually get our tickets in my hands. 

It didn't matter that we had 3 single tickets scattered throughout the arena, I knew we would at least get in and I believed we would figure something out once inside. 

As I handed our tickets at the door, they were scanned and the man said, "You know these aren't together, right?"

Of course I knew, but I didn't care as we entered the arena which was already electric with thousands of little girls about to have the best night of their young lives. 

My first idea was to try and get on the floor, might as well try for the best. We were stopped and asked to present our tickets before we could enter the floor. I handed the lady our tickets with the floor ticket on top. Sadly, she looked at all 3 and said, "These aren't together. Only one of you can enter."

I was expecting that response and then started to plead our case. She couldn't help us, but pointed us in the direction of Guest Services. Once there, an extremely nice and compassionate lady helped us. I didn't even need to beg and plead. She told us to follow her and a few minutes later, we were at a wheelchair section with a perfect view of the stage. But, there was a problem. It was filled with mothers and daughters. None of them in wheelchairs or walkers or giving any indication why they needed wheelchair seating. 

The lady from the arena talked to some of the moms and they agreed to make room for us and to their credit, they gave Kellisa the best place to sit. Lisa stood behind Kellisa and I behind Lisa so we didn't block anyone's view. 

I am very critical of able bodied people for stealing the extremely few benefits afforded to people with disabilities. From where I was standing, I could see three additional wheelchair sections and not one wheelchair. My emotions were mixed. I was furious, but also thankful to have gotten Kellisa to where she needed to be.

Some of you might be thinking, maybe those other kids had invisible disabilities. Maybe the moms were disabled. All valid points, but before the concert started, a couple of the moms came over and basically told us how they scam to get the tickets by going for the wheelchair tickets first due to lower demand while everyone else fights for the regular seating. They were trying to be nice and share their secret to getting seats, but I also saw it as an admission of stealing something from someone with disabilities. 

Rant over. Kellisa was inside the arena! My mission was accomplished and like thousands of other girls for that night, she had the time of her life! This concert was two months before we purchased our first digital camera, so we didn't take any pictures. The above picture is Kellisa enjoying herself at the beach in her Hannah Montana concert t-shirt.

Lastly, it's been over 13 years and my ears are still ringing from all the little girls screaming their heads off for hours inside a building designed to maximize the sound. I heard the tour manager for Hannah describe the crowd as, "Worse than standing behind a jet engine."  

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